Dear parents of children with chronic illness,
As a child with chronic illness, I can tell you that nothing is more hurtful than my parents getting frustrated with me because of my chronic illnesses. I hear all the time “What are you going to do when we’re not around?” and “What would you do if we weren’t here right now?”, and the honest truth is that I don’t know. I’m 21 years old, still living at home, and still relying on my parents and boyfriend to help take care of me. This is not the life I thought I’d be living. I appreciate everything my parents do for me… With that being said, I hate when they get frustrated with ME over my illnesses. It truly is hurtful. It makes me feel like they think I could be doing more, I’m a burden to them, I’m enjoying being dependent, and that they don’t believe how I’m feeling. Worst. Feeling. Ever. I understand being frustrated with the SITUATION, because believe me, I am too. But parents, please don’t get frustrated with your child. “Chronic” means it’s never going away. This is something I have no control over and if I did, I can promise you things would be different… Just some insight.