My Great Uncle. My inspiration. This man means the world to me. He’s taught me so much about life and love. Simply being in his presence puts a smile on my face. I’m laying here thinking “he won’t be at my wedding”… To the man he thinks so highly of. I can only hope my marriage is like his and my Aunts. Best friends through everything. I can’t even imagine what it will be like when you’re not here… I don’t want to. The selfish part of me wants you to stay, needs you to stay. But in my heart I know you’ve fought a long and hard battle. I know you’re tired. I know you’re ready. I love you so much. Thank you for being such an amazing part of my life. I know God has a plan, whether we understand it or not. I can understand why He wants you to come Home; the same reasons I want you to stay.

My Great Uncle. My inspiration. This man means the world to me. He’s taught me so much about life and love. Simply being in his presence puts a smile on my face. I’m laying here thinking “he won’t be at my wedding”… To the man he thinks so highly of. I can only hope my marriage is like his and my Aunts. Best friends through everything. I can’t even imagine what it will be like when you’re not here… I don’t want to. The selfish part of me wants you to stay, needs you to stay. But in my heart I know you’ve fought a long and hard battle. I know you’re tired. I know you’re ready. I love you so much. Thank you for being such an amazing part of my life. I know God has a plan, whether we understand it or not. I can understand why He wants you to come Home; the same reasons I want you to stay.

elephanttrousers
elephanttrousers:

wanderonwithpurpose:

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “You’re only 20. How sick can you be?”]
Actually had a doctor say this to me. Needless to say it was extremely upsetting.#pcos #diabetes #osgood-schlatter #migraines

I’m not sure if I’ve talked about my journey of Chronic Illness on here or not. Here is the short version. Had a relapse of Mono at age 15, so severe it attacked my heart. Was left with Ectopic Atrial Tachycardia (my heart rate was as high as 224bpm on a daily basis. Resting at about 180bpm). Had 2 heart surgeries (cardiac ablations) within a few months of each other (April then August). Was put back in hospital that October for pacemaker pre-op tests. Instead went to cardiac rehab for a few months (did the trick). I’m left with no residual heart damage (literally a miracle), the only thing is just a flutter once in a while and my heart rate will become higher faster than the average persons. Although I was left with no residual heart problems, I was left with Fibromyalgia and severe IBS. Oh yeah, I forgot to mention this whole process took about 2.5 years. Seriously a miracle I have no heart damage. So now at the age of 21 I’m still struggling. I’ve never wanted to go on a daily medication for Fibromyalgia, but a few weeks ago I saw the neurologist (I have severe chronic migraines as well. Woohoo) and was told one of my only options left, outside of Botox (which I want, but cannot afford), is Lyrica. Lyrica is also used to treat Fibromyalgia pain. Since starting it about 3 weeks ago, I have noticed a reduction in my migraines, but I feel more achy and just generally uncomfortable than before I started it. I’m trying really hard to get up to the full dosage so I can at least say I tried it. But it’s becoming really hard. Has anyone else experienced this with Lyrica?

Firstly, I’m really glad you came out of this without more further bodily damage.  Severe tachycardia can lead to not only heart damage but severe loss of renal function.  I’ve never heard of Lyrica for migraines, but because fibromyalgia is a nerve disorder usually Norcos/Vicodin help, but can be damaging to the liver.  I am a huge huge advocate of medical marijuana.  Because marijuana works at the nerve level, it may help with fibromyalgia and migraine pain, although some people may not want to do it.  Just a thought though,  I wish you the best!:)

I’m also a huge advocate for medical marijuana. But unfortunately, I live in a state where it is not yet legal. They actually just voted on it this week and it passed the Capitol with like 172 to 4, but failed the Senate. So no medical marijuana for me so far :/ I do take Lortab, but only when I absolutely need to. It’s so hard on your body and I can’t function on it so I try to avoid taking it. And I hadn’t heard of Lyrica for migraines either, but I think they’re running out of options and just trying whatever has the possibility of working. Also, thank you so much for your kind words. I’m glad I came out of the tachycardia with no damage as well! Haha

elephanttrousers:

wanderonwithpurpose:

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “You’re only 20. How sick can you be?”]

Actually had a doctor say this to me. Needless to say it was extremely upsetting.

#pcos #diabetes #
osgood-schlatter #migraines

I’m not sure if I’ve talked about my journey of Chronic Illness on here or not. Here is the short version. Had a relapse of Mono at age 15, so severe it attacked my heart. Was left with Ectopic Atrial Tachycardia (my heart rate was as high as 224bpm on a daily basis. Resting at about 180bpm). Had 2 heart surgeries (cardiac ablations) within a few months of each other (April then August). Was put back in hospital that October for pacemaker pre-op tests. Instead went to cardiac rehab for a few months (did the trick). I’m left with no residual heart damage (literally a miracle), the only thing is just a flutter once in a while and my heart rate will become higher faster than the average persons. Although I was left with no residual heart problems, I was left with Fibromyalgia and severe IBS. Oh yeah, I forgot to mention this whole process took about 2.5 years. Seriously a miracle I have no heart damage. So now at the age of 21 I’m still struggling. I’ve never wanted to go on a daily medication for Fibromyalgia, but a few weeks ago I saw the neurologist (I have severe chronic migraines as well. Woohoo) and was told one of my only options left, outside of Botox (which I want, but cannot afford), is Lyrica. Lyrica is also used to treat Fibromyalgia pain. Since starting it about 3 weeks ago, I have noticed a reduction in my migraines, but I feel more achy and just generally uncomfortable than before I started it. I’m trying really hard to get up to the full dosage so I can at least say I tried it. But it’s becoming really hard. Has anyone else experienced this with Lyrica?

Firstly, I’m really glad you came out of this without more further bodily damage.  Severe tachycardia can lead to not only heart damage but severe loss of renal function.  I’ve never heard of Lyrica for migraines, but because fibromyalgia is a nerve disorder usually Norcos/Vicodin help, but can be damaging to the liver.  I am a huge huge advocate of medical marijuana.  Because marijuana works at the nerve level, it may help with fibromyalgia and migraine pain, although some people may not want to do it.  Just a thought though,  I wish you the best!:)

I’m also a huge advocate for medical marijuana. But unfortunately, I live in a state where it is not yet legal. They actually just voted on it this week and it passed the Capitol with like 172 to 4, but failed the Senate. So no medical marijuana for me so far :/ I do take Lortab, but only when I absolutely need to. It’s so hard on your body and I can’t function on it so I try to avoid taking it. And I hadn’t heard of Lyrica for migraines either, but I think they’re running out of options and just trying whatever has the possibility of working. Also, thank you so much for your kind words. I’m glad I came out of the tachycardia with no damage as well! Haha

TO: PARENTS OF CHILDREN WITH CHRONIC ILLNESS

Dear parents of children with chronic illness,

As a child with chronic illness, I can tell you that nothing is more hurtful than my parents getting frustrated with me because of my chronic illnesses. I hear all the time “What are you going to do when we’re not around?” and “What would you do if we weren’t here right now?”, and the honest truth is that I don’t know. I’m 21 years old, still living at home, and still relying on my parents and boyfriend to help take care of me. This is not the life I thought I’d be living. I appreciate everything my parents do for me… With that being said, I hate when they get frustrated with ME over my illnesses. It truly is hurtful. It makes me feel like they think I could be doing more, I’m a burden to them, I’m enjoying being dependent, and that they don’t believe how I’m feeling. Worst. Feeling. Ever. I understand being frustrated with the SITUATION, because believe me, I am too. But parents, please don’t get frustrated with your child. “Chronic” means it’s never going away. This is something I have no control over and if I did, I can promise you things would be different… Just some insight.

Looking at this picture, you would think I’m either drunk or high. I’m neither. This is what a migraine with aura looks like. It feels completely different than a regular migraine. My auras feel like as if I’ve taken an opiate painkiller…. Heightened emotions, disorientation, dizzy, loopy, everything has a yellow tint, lights are brighter and sounds are louder. Plus, the throbbing pain that comes along with a regular migraine.

Looking at this picture, you would think I’m either drunk or high. I’m neither. This is what a migraine with aura looks like. It feels completely different than a regular migraine. My auras feel like as if I’ve taken an opiate painkiller…. Heightened emotions, disorientation, dizzy, loopy, everything has a yellow tint, lights are brighter and sounds are louder. Plus, the throbbing pain that comes along with a regular migraine.

chronicillnesscat
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “You’re only 20. How sick can you be?”]
Actually had a doctor say this to me. Needless to say it was extremely upsetting.#pcos #diabetes #osgood-schlatter #migraines

I’m not sure if I’ve talked about my journey of Chronic Illness on here or not. Here is the short version. Had a relapse of Mono at age 15, so severe it attacked my heart. Was left with Ectopic Atrial Tachycardia (my heart rate was as high as 224bpm on a daily basis. Resting at about 180bpm). Had 2 heart surgeries (cardiac ablations) within a few months of each other (April then August). Was put back in hospital that October for pacemaker pre-op tests. Instead went to cardiac rehab for a few months (did the trick). I’m left with no residual heart damage (literally a miracle), the only thing is just a flutter once in a while and my heart rate will become higher faster than the average persons. Although I was left with no residual heart problems, I was left with Fibromyalgia and severe IBS. Oh yeah, I forgot to mention this whole process took about 2.5 years. Seriously a miracle I have no heart damage. So now at the age of 21 I’m still struggling. I’ve never wanted to go on a daily medication for Fibromyalgia, but a few weeks ago I saw the neurologist (I have severe chronic migraines as well. Woohoo) and was told one of my only options left, outside of Botox (which I want, but cannot afford), is Lyrica. Lyrica is also used to treat Fibromyalgia pain. Since starting it about 3 weeks ago, I have noticed a reduction in my migraines, but I feel more achy and just generally uncomfortable than before I started it. I’m trying really hard to get up to the full dosage so I can at least say I tried it. But it’s becoming really hard. Has anyone else experienced this with Lyrica?

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “You’re only 20. How sick can you be?”]

Actually had a doctor say this to me. Needless to say it was extremely upsetting.

#pcos #diabetes #
osgood-schlatter #migraines

I’m not sure if I’ve talked about my journey of Chronic Illness on here or not. Here is the short version. Had a relapse of Mono at age 15, so severe it attacked my heart. Was left with Ectopic Atrial Tachycardia (my heart rate was as high as 224bpm on a daily basis. Resting at about 180bpm). Had 2 heart surgeries (cardiac ablations) within a few months of each other (April then August). Was put back in hospital that October for pacemaker pre-op tests. Instead went to cardiac rehab for a few months (did the trick). I’m left with no residual heart damage (literally a miracle), the only thing is just a flutter once in a while and my heart rate will become higher faster than the average persons. Although I was left with no residual heart problems, I was left with Fibromyalgia and severe IBS. Oh yeah, I forgot to mention this whole process took about 2.5 years. Seriously a miracle I have no heart damage. So now at the age of 21 I’m still struggling. I’ve never wanted to go on a daily medication for Fibromyalgia, but a few weeks ago I saw the neurologist (I have severe chronic migraines as well. Woohoo) and was told one of my only options left, outside of Botox (which I want, but cannot afford), is Lyrica. Lyrica is also used to treat Fibromyalgia pain. Since starting it about 3 weeks ago, I have noticed a reduction in my migraines, but I feel more achy and just generally uncomfortable than before I started it. I’m trying really hard to get up to the full dosage so I can at least say I tried it. But it’s becoming really hard. Has anyone else experienced this with Lyrica?